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Casual conversations with purpose featuring interesting, inspiring, and innovative people from a variety of backgrounds, experiences, and industries. Everyone has a story to share, and every story is worth sharing.

Feb 19, 2013

I'm joined this week by Sarah, the Afternoon Napper - as she calls herself. Our conversation revolves around her life with fibromuscular dysplasia, her lengthy diagnosis story, what it means to live with a rare disease, and how she's been able to leverage social media to form a community around a disease that impacts a small number of people in the country. We also talk about Sarah's dual identities (online) and how these identities are merging. Finally, we discuss Rare Disease Day and the importance of awareness before action. Enjoy.

Follow Sarah on Twitter at @AfternoonNapperand keep up with her many endeavors at:

Run Time - 1:01:12

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